You Are My Happy.

Last night, there was a dance party at my house. There was a full-on, booty-shaking, jump-up-&-downing, arm-waving, bass-thumping rave in my living room, and it was fantastic.

Did you know that I have a three-year old now?

Three years ago, the second-hardest year in my life had just begun. “It was the best of times; it was the [almost] worst of times,” and it was a tremendous, tumultuous torrent of faith, fear, post-partum psychosis, and sleepless nights.

It was everything I wanted, everything I was terrified of, and everything I needed.

It still is.

Parenthood has drawn more out of my husband and I than we ever thought possible. It has pushed us physically, mentally, and spiritually to our brink, and it has made us more thankful for life, for each other, for Jesus, for breathing, than we have ever known. Parenthood makes you speak in superlatives on a minute-by-minute basis. Everything is amazing. Everything is awful. Everything is incredible. Everything is terrible.

Parenthood leaves no room for middle ground.

Parenthood-post-loss leaves no room for sleep.

It leaves no room to allow the mind to relax (for the first year) because you are constantly fighting the “what-ifs” that want to run rampant in your postpartum-crazy life. YOU CAN’T LET THEM. They’ll take over, and you’ll find yourself in mental hysterics that only Wellbutrin and Jesus can fix. You can’t let it in, not even for a second. It gradually gets better, but I know my first 6 months after JD was born were so mentally difficult. You’re afraid to celebrate the moments, because you alone understand how quickly they can be taken away.

It’s a feeling that permeates your soul for years.

Last night was a great example: There we were: David and I, jumping around like 2 insane, sugared-up rhythmless Michelin Men around the living room. Jericho, meanwhile, was getting a first-class lesson in how to shake his rear, which resulted in him looking like a tiny, underwear-clad Derek Zoolander. He couldn’t figure out how to “shake” his rear, so he’d stop, stick out a hip, and rock a Blue Steel pose like nobody’s business. Too bad he’s gonna be short, because he can pose like Karlie Kloss! LOL—I kid. Anyways, we were dancing like fools to “Happy,” and while we were in that moment, I wanted to be deliriously happy…

 But I couldn’t let myself…

Because the last time embraced a moment and allowed myself to be deliriously happy (and blogged about it), the next day I found out I had cancer and could possibly, permanently lose my voice (I didn’t).

It took so much for me, that last time, to have the courage to say “I am deliriously happy.” It took a lot, and then THAT happened. And the time before that, when I held my daughter and thought, “I am deliriously happy,” we lost her…that kind of paradigm shift has consequences. I thought I had healed from that, but I guess not.

So now, when I find myself wanting to say that I am “deliriously happy,” I can’t.

I can’t do it.

Not yet.

I’m not mad at God.  I’m hurt, but I’m not mad…I’m questioning…I’m curious…I trust that He has a plan…I know He loves me…but I’m confused.

And I’m afraid to fall…

More than that, I’m afraid the ground will come out from under me, and there I’ll be, flat on my back like a broken mess, yet again…I’m not ready to be broken again, so soon, and I guess I feel like that goes hand-in-hand with happiness, like I can’t have one without the other?

Last night, I WAS deliriously happy.  There, I said it. But it was so cautious…I told my husband I was afraid to feel it, afraid to accept that yes, this is happening: This is a happy moment, with no pressure, no bad news, no judgment, no fighting, and no bill. THIS IS A HAPPY MOMENT, CASSIDY. LOVE IT.

Why is that so hard for me to embrace?

My son makes me stop and hold him…I grab him up, I feel his arms wrap around my neck, and he squeezes for all he’s worth. I breathe in his hair and kiss his forehead. I celebrate every single hug, because I know some day he won’t think it’s cool to hug Mommy anymore. I get all of the hugs I can get, not just because he is mine, but because every hug reassures my faith that happiness IS ALLOWED. We can BE HAPPY in this life, even though the world tells us it’s impossible. 

He says, “Are you happy, Mommy?” “Yes, baby, I’m happy. You are my happy.” He has no idea of the ledge he has pulled me off of, nor will he ever know, because that is too much pressure for anyone (ask David, Senior Ledge Puller). When the questions outsize the answers, my boys are my reminder that Jesus is the Answer, and He carries us all…

I am happy. I really am. And someday (soon, I’m sure) I will allow myself to throw my head back and laugh, and be as carefree as I used to be—as carefree as my beautiful son is—and I will re-embrace the joy that can only be found in dropping the baggage brought on by fear and disappointment. Someday, carefree will come easily to me.

Until then, I will watch it be a lifestyle for my son, and I will do everything in my power to ensure that he stays in that carefree lifestyle as long as possible…

Even if that means looking like a spastic Michelin Man in my living room.

Just an Update...

I am overdue for a catch-up on this thing. It’s been over a month, and what a month it has been…

Halfway through the month of December, I had to stop my thyroid replacement medications (TRH) in order to prepare for the scheduled radiation tracer/whole body scan that was scheduled at Siteman on 1/8/16. You have to stop your meds for 2 weeks, because the meds suppress your Thyroid Stimulating Hormone (TSH) and your thyroglobulin levels (cancer/tumor markers), and your labs need to reflect your true levels. I’ve said before that thyroid cancer will not kill you (it’s true—it’s slow-growing, totally not aggressive—usually—and is easy to treat. You just remove the thyroid and do a simple round of radiation). Nope—the cancer won’t kill you. Getting the thyroid medications regulated, however, just might, as it can make you lose your damn mind. Once you’ve got it regulated, then you’re cooking with peanut oil…but it takes a really long time to do that, and it can change out of nowhere (weight gain/loss, solar flare, mercury in retrograde, etc…I’m kidding. Sort of.). So, we think we have my dosage sort of regulated…maybe…

That being said, I’ve fired my treating endocrinologist, because either she or her staff failed to communicate the correct dosage of my TRH to my pharmacy, and I wound up borderline-suicidal in a church parking lot, while my poor husband contemplating having my @$$ locked in the funny farm. It was a disaster. I transferred care to the Center for Advanced Medicine at Barnes (since all of my other doctors are at Siteman/CAM), and had my first appointment with the new doc this week. We’ll see how it goes; he seemed nice enough, but basically said I'm condemned to utter fatness for the next 6 months, and to stop beating myself up over it. I say "whatevs" to the skinny man...blah.

Anyways, back to December: I had to go off of the meds for almost 3 weeks. I had no idea what I was in for. The hormones your thyroid produces (and that the synthetic TRH tries to duplicate) affect Every. Single. Cell. of your body (http://www.bastyr.edu/news/health-tips/2012/04/what-your-thyroid-and-what-does-it-do).  Every one of them. When you have your thyroid unceremoniously removed (without notice or true explanation), or when you stop your TRH, your cells FREAK THE HECK OUT and you go into a horrific tailspin of exhaustion/psychosis/stupidity that is truly unprecedented. No one can prepare you or your family for the trainwreck you will become; you get super-emotional, you start gaining weight like a manatee (#15 in 2 weeks!!!), you can’t stay warm, and you don’t have enough sense to adequately explain what is happening to you, so your family just thinks you’re being a giant douchebag.You forget things, you have (-) energy, and your brain function declines into something resembling Silly Putty.

It sucks.

That was my Christmas.

And then the floods came. 

JD and I were staying at my parents’ house, which was supposed to be a time of rest for me. However, their basement flooded, and they had to unpleasant task of keeping the water at bay. JD had to be corralled into the largest room of their house, and I had to chase him more than I physically could…and THEN the highways closed, so David couldn’t come get us until New Year’s Eve. We were all exhausted, JD was out of his routine (and acting out), and my “break” wound up being incredibly stressful for ALL of us. Honestly, it was just a total comedy of errors that was further complicated by nature…I’m grateful to my family for letting us stay with them, and for as much help as they were able to give with JD when I wasn’t able to manage him at times during the day…but it was definitely difficult.  By the time we were finally back home, my bed never felt so good (and I really didn’t want to crawl out).  I still had to go back to work for 1 week without my thyroid meds; by the time the week ended, I was only able to work a half-day before coming home and sleeping it off for a few hours. BRUTAL.

On Friday, 1/8, David and I headed to Barnes for my baseline scan (I’d had a radioactive tracer two days before). The scan took about 90 minutes, and afterwards, we headed to Siteman to get the interpretation. I already had my lab results, so I knew my tumor markers were up, and that my cancer was back. I was totally prepared to deal with that—you take a dose of radiation, you start your thyroid meds back up the next day, and all is well for 6 months. Except….

That didn’t happen.

My scan was negative.

According to the Radiation Oncologist, because my labs show that I have cancer, but my scan can’t find it. They believe the cancer cells are now “smart” cells, and no longer uptake the tracer radiation/treating radiation, so the next move is to have a PET scan at the end of this month. I really don’t like that idea; to me, PET scans tell you a lot of stuff that you don’t necessarily WANT to know…I realize that I’m being ridiculous about it, but in my gut, that’s one test that I’ve never been a fan of. It’s the equivalent of someone asking you, “How are you?” and instead of you answering with “Fine, and you?” you instead word-vomit on them with everything they ever wanted to know about you, your day, your ancestry, and your Instagram of what you had for breakfast. It’s too much information, and more about myself than I really want to know.

I told you I was being ridiculous about it.  It really is the best kind of scan for what I’m dealing with (which is NOTHING. Slow-moving, non-aggressive cancer that really should be called something else.). It’s just super-invasive to me, and something I’m not looking forward to.

I’m disappointed, kind of scared, frustrated at the lack of time/money, time off of work. Driving to-and-from Barnes is an exercise in anxiety-management for me, dragging my family into this for care of myself and/or my son is a pain, blah, blah, blah, blah…It’s stupid. I’m totally not cool with what’s going on right now. I’m resigned to it, but I’m not cool with it. My biggest frustration is the nagging question of “why” that I’m struggling NOT to ask God, but I find myself asking in the wee hours…Like, why are we dealing with this (after all we’ve been through, do we not have enough “credit” to get a “pass” of some sort?!?”)? Why can’t we just hit our “Easy” button? Do we get an “Easy” button? Did we piss God off some way, that He’s hitting that “smite” button? Are we cursed? People must think we’re cursed at this point…or just, like, really, really bad sinners, that we’re dealing with this kind of judgement on our lives…

I am ridiculous.

As soon as these questions flash through my brain, I smack them down. They’re gnats from the enemy, annoyances that attempt to embed in my heart and my brain, to take down my spiritual life. I see them for what they are, and I try not to give those thoughts the time of day. They only lead to pain in my heart, and they’re ultimately pointless. I want His will, and I want to lean on Him. I want my husband and family to lean on Him. I trust Him, even when I’m not seeing Him clearly, which I’m not right now.

He knows what He’s doing, even when I feel ultimately perplexed. This is a season, and it will all be clear at some point. He lets me know through random things that He’s here, and He’s listening; that He has a point, and that He loves me ferociously. That’s what I can focus on. A lot of people are going through a LOT worse, a lot harder, and I really have nothing to whine about. It’s the aggravation more than the physical issues that I’m struggling with; I know SO many people that are dealing with BOTH, and my heart goes out to them. They are far more deserving of prayers, meals, hugs, etc., than David & I are, because we are not dealing with a severe issue here.  My TRH is regulated, and as long as I stay on it, I’m good. I’m back on it now, so my life is fine, even with the PET scan looming at the end of this month.

We’re good. We’re fine; JD is getting back into the swing of things, and after a week of being a Tiny Tyrant, he looks like he grew 3” and has finally calmed down. We are well, we will continue to be well, and we are thankful for the health care providers that are in communication and are managing my issues.

That’s my update…Now, if only I could nap….a lot…