Showing posts with label SHARE Walk. Show all posts
Showing posts with label SHARE Walk. Show all posts

Tuesday, October 27, 2015

The Perceived Suckiness of the Plans of God and Silencing the What-Ifs...



For years, October 30th glared at me from the calendar.  Every day that approached was like another page turning in “The Monster at the End of This Book” (see THIS for more details—with pictures!).
This year, I’m not sure what’s different…Is it the pace of life? Is it the fact that physically, this year has left me feeling pretty spent (and marginally emotionally uninvested)? Is it the fact that I am finally, truly at peace with a clearer understanding that my daughter—who would be turning 9 this year—is, beyond the shadow of a doubt, with my Savior? 

I generally have my prayer time on my commute to work. I feel like I can have an unadulterated, uncensored, frighteningly-but-beautifully frank conversation with the Lord, free from pretense or interruption (with the glaring exception of the occasional eruption of road rage). This morning, we talked about Hannah…about the fact that my concrete beliefs that there is a Heaven, that Jesus is there, and that my daughter is with Him, are probably the only reason I have survived the loss of my firstborn. Without that knowledge, without knowing Him (in as broken of a way as I do), I would be lost. Even with that, there were days the despair was so heavy that I wanted to end it all. I will never, ever forget those days of darkness…there really is nothing like it. It’s like living in a state of suffocation…but not quite enough that you get the bliss of unconsciousness. It’s scary, because all you want is to be extinguished; however, your own faith keeps you from pulling the trigger yourself. You just pray that something else kills you (I can’t tell you how many times I prayed my heart would just explode). It’s the hardest thing a soul can go through…And we survived.

We made it (oh, the fear that goes into making that actual statement…there is no pride there, trust me. There is simply the acknowledgement and gratitude of the Spirit of God that kept us from self-destructing). I’m not sure how I didn’t off myself, or how David didn’t lock me up (or why he hasn’t as of today…I’m not ruling it out as a possibility at some point in my life, LOL), other than by the grace of God.  And how thankful am I, for that grace? If not for the grace of God…I wouldn’t be here. Jericho wouldn’t be here.

When I think of all of the joy that would be missing from the world, without that little boy…
God is good, y’all. He sustains us, even at our weakest, our most unlovable, our most vulnerable. He doesn’t walk away, even when we yell at Him in our anger. He doesn’t give up, even when we don’t want to breathe. He stays, even when we are unfaithful.
His ways are not our ways. His plans don’t make a lot of sense to us…and who are we, to think that they have to? I had a friend who recently said, “I’m sick of being told that God has a plan for all of this. If this is His plan, His plan SUCKS.”

After I took a few steps to the side, so as to avoid the proverbial lightning strike (God doesn’t really do that…I hope), I didn’t really say anything back to her. I just told her that I understood. It’s true…to us. Sometimes His plans just suck. Going into heart failure sucked.  It sucked, to lose my daughter. It sucked, when my husband lost his job. Those years of unemployment/underemployment? THEY SUCKED. Finding out I had cancer this summer? IT SUCKS. Do I think that God sits in Heaven, intentionally inflicting pain on His constituents? No…but I certainly think He uses it to draw us into Him. He takes these things…these results of living in a fallen world that hates His children…and He recognizes that they hurt. Jesus wept when His friend Lazarus died. He wept, even when He knew what was to come. He cried because it sucks when your friends die…even when You’re the Son of God. Jesus cried in the Garden of Gethsemane. Why? Because He knew what was to come…He knew it would hurt…He knew it would separate Him from His Father…and He knew it was gonna suck, BIG TIME. Sometimes, God’s plans just suck.

(It’s at this point that I recall how many times I got into trouble for saying something/someone totally sucked, in elementary-junior high-high school. Never really broke that habit.)

Even though things are arduous (fancy-talk for “sucky”), it’s only for a little while in the grand scheme of things. There is always, always, ALWAYS another side to the battle. There’s a break in the storm; even hurricanes eventually come to an end, although they seem insurmountable in the process. 
It WILL get better, because He is. HE IS.

We have that truth—the truth of The Great I Am. Sometimes, those two little words are all we can wrap ourselves around in the middle of the chaos…

I spent about an hour on the phone with my Mama the other day. She’s taught me a lot, and I feel like she’s lived a lot of life in a few years. I’m sure I’ve aged her a few decades on my own, although you’d never know it to look at her—she’s super snazzy!!!! I’d like to be more like her, when I grow up. We discussed the fact that this summer was pretty much a great big pile of poo. Seriously—getting cancer (albeit, “the good kind”) really trashed most of my plans. It took up all of my vacation time, rendered me unable to tend to my garden (big waste of $$), made me unable to really have too much fun (minus my concerts—those were a blast), and I am STILL dealing with trying to get my meds regulated. She took quite a bit of care of me and JD during that time; the emotional toll of being told mid-surgery that your child (even a grown-up child) has cancer is pretty great….even when it’s “the good kind” (that phrase!). If not for the ever-changing antics of JD (and my concerts), I’d like to forget most of this summer. So would my mother. She really took my diagnosis hard, and I think she still struggles with the aftermath. Every 6 months for the next 2 years, I will have tests; because of the high reoccurrence of this kind of cancer, I’ll probably have labs to monitor my thyroid levels for the rest of my life (also, to maintain the dosage of replacement medication that I have to take).  That’s a lot to ask of a person as a patient; I think it’s more to ask of that patient’s mother. My mom has held my hand through 10 of my 11 surgeries; it’s safe to say that this one was the hardest on her.  Cancer is a kind of chaos that requires clinging to “I Am.” Even the “good kind” of cancer wreaks havoc on a mother, when it’s her child. My mom really hit her knees through this process, and I know her prayers have been heard.

Mom and I talked about my fears and frustrations in our phone call. The change of seasons…grayer days…gloomy weather…the ever-approaching end of the month…It all affects me, emotionally and spiritually. I look for ways to escape; I find myself dealing with irrational fears. I don’t want to go anywhere; I just want my blanket and a fireplace screensaver on Netflix. I eat more, and I make bad choices. I’m more introspective and less social; I bake more, and channel my lack of adventure into a recipe book. The irrational fears are a problem. The “what ifs” go from a murmur in the back of my brain to a screaming chorus in my head that makes me paranoid about everything, and there is a daily battle to keep it in check. You could say that my natural crazy gets “turnt up,” and it’s a problem. Mom talked to me about prayer, and I said that I wondered if it’s the natural fear associated with Halloween that I’m subconsciously picking up on? She said it’s not…it’s this time of the year. She’s right.

Not having a birthday party to celebrate is a nagging constant in my brain and in my heart…I’d be lying if I didn’t admit that it hurts. This time of the year makes me more emotionally sensitive. I HAVE to disassociate; I have to unplug. I have to make myself stay off of Facebook for a few days; I have to stop reading the news (I think I need to do that, regardless of the time of the year). There are 29 days each fall where the clock is pounding in my head…where was I, what was I doing, what was Hannah doing? Only in the past 3 years has that improved, and that is honestly because having a toddler means that I don’t have time to climb down that rabbit hole. It’s an unfair pressure to say this about my son, but he has, in so many ways, pushed me to a different place of healing where Hannah is concerned. You simply, physically, cannot focus on the sadness and on what you missed, when there is a child that takes up most of your attention. Days become markers on the calendar, rather than the overwhelming emotional valleys. Life forces you to move through and walk forward, rather than stopping (notice I didn’t say “move on.” That’s another discussion).
That’s not to say there aren’t pauses, and that there aren’t moments where it hits…that there aren’t moments like this morning, where I wonder what would have been? What would she be like? I have no idea…
But I know what her brother is like.

And I suspect that had she made it…had she survived…he wouldn’t be here (we wouldn’t have tried again, because of the damage I sustained to my heart. I really don’t think David would have wanted to risk another pregnancy, and I think I would have been reluctant to, as well). God has a plan for that little boy that we have yet to have a clue toward…

I think the greatest way to celebrate Hannah’s birthday is to thank her…Having her, knowing what motherhood felt like, loving someone so strongly and having that blessing to hold in my arms, was the greatest gift I’ve ever been given outside of my salvation. She has an eternal impact on my life and on my soul, and I am grateful for the chance I had to hold her. My son is in no way, shape, or form, a replacement for her…but he IS a response to her. I knew that I knew that I KNEW that we were meant to be parents after Hannah died, and we pursued that dream until it became a reality…The reality known as Jericho.

What we have does not replace what was lost…and focusing on our present is the best way to honor the past.

So, on October 30th, I’d like to say that the day will go on as mostly “normal:” David and I will both go to work; JD will go to daycare. We have a meeting scheduled that afternoon, and I may convince David to go out to dinner; otherwise, we will treat the day as any other. At the end of the day, though, I will get a candle out of our coat closet. It’s a Birthday Cake candle, made by a mother in Kentucky who lost her son. I light it one day a year, on Hannah’s birthday.  I will light that candle, and we will pause…we will hold our son a little tighter, and maybe keep the bedtime ritual a little more relaxed…We will kiss our boy, and we will be thankful for the love we have, for the grace of God, and for the beauty of knowing the peace of the Great I Am…We will marvel at the good, the bad, the sometimes-perceived “suckiness”, and the overall, misunderstood awesomeness of the plans of God….And we will cling to the verse that David chose as our wedding verse, because every year, it just becomes more and more clear that only He fully knows what He is doing; all we know is that we can rest in His plans because above all, He is a good God:
9. However, as it is written: “What no eye has seen, what no ear has heard, and what no human mind has conceived” the things God has prepared for those who love Him—I Cor. 2:9 (NIV)

Thursday, October 17, 2013

Dread, Monsters, and Muppets...

It's that time of the year. Every October, I can't help but reference my favorite children's book: "The Monster At the End of This Book."
In years past, as soon as October 1st hit, the dread would start...Her birthday is coming....
The days go by...the calender turns page by page...
 Every day that passed by would take me closer...and closer...and closer...
 Infant Loss Awareness Day (10/15)....the National Share Walk for Remembrance and Hope (10/19, this year)....It kept building....
You can try to stop time, but you're not going to be very successful. You can see the monsters coming...you know that on that day, you will consciously and subconciously replay
 Every. Single Detail. 
You will remember what the doctor said when he came in to see you that morning at 8:00 am. You will remember frantically calling your family in at 8:04. You will remember regretting the orange juice, but being thankful that you did because it held off the delivery of your perfect princess until everyone could be there.
You will remember being aggravated at the conversations going on around you, as a drug that felt like liquid death coursed through your veins. You will remember the strength of your sister's hand in yours, of her blue eyes looking back at you with concern, and of wanting to throw Taco Bell at your husband...
The lights were too bright...things were too rushed...the shaking, the smells, the sounds...
The cry...
You will remember your first look at the most perfect person you had ever seen...
Tiny, elegant grace...
A quick kiss, before she's whisked away to the NICU...
At 1:24 pm.
You will remember
Every. Single. Detail...

(Okay, that's not exactly true. It just sounds good...I do remember all that I just described, but there's a lot that was a blur. Going into heart failure means that your brain just doesn't work as well, and there are a few things that I'm missing. And as much as I hate to say it, some memories fade over time...But I remember a lot, and I cling to those memories ferociously. And hey--although part of me wants to feel guilty over not remembering every single detail, the rest of me acknowledges that deliveries--especially high-risk ones--are full of rushed decisions, quick procedures, and kind of a hot mess of what's-happening?!?!? So, realistically, I can't be expected to remember it all. I just remember what matters, and that's her beautiful face...)


Of course, it happens: The day comes.  You wake up in the morning, you start to go through your routine, and then you realize (if it hasn't woke you up already) that it's time: It's her birthday. 
The sky is still blue...The sun still comes up. You're expected to maintain your performance at work, unless you have vacation time built up that you can take off (I don't).
You find yourself wondering how you can "celebrate: Do you go to the cemetery? Not possible, this year...Do you cry? Sometimes. Is it awful, if you don't? No--it just means you're not at that stage right now.
I'd like to take the day off...to get a massage with my husband, to get a pedicure, and to indulge in things that make me feel relaxed and quiet...to do something that gives me a place to process my thoughts, and to be together with him. I'd like to let go of balloons at the cemetery (but we'll get the chance to do that at the Share Walk). Instead, the day will be rushed, and my time for reflecting will be done in the evening as I'm in bed. I might cry my face off; I might not. Grief is unpredictable in how it strikes, when it strikes, and how it presents itself. 
I'll spend a lot of time thinking of what Hannah Elizabeth Gayle means to me...how she smelled like Cheerios (and when I forget, I will literally buy a box just to sniff it)...how she felt (she weighed about as much as a gallon of milk, and when I forget, I will cradle that in my arms)...I might go through her memory box, though I know that's a definite trigger (but sometimes, I just have to look back at those tiny handprints).
I'll spend time wondering what she'd be like...in the first grade...I imagine she'd be doing a lot of twirling. I'm not sure why I think that, but every time I dream about her at this age, I see her twirling. I also think she'd be a redhead, and that she'd probably have inherited her auntie's blue eyes.
I think my house would be a sea of pink and glitter, and that I wouldn't mind.
I think she'd love her brother, and that I'd be saying a lot of "Stop changing his clothes! He's not a doll! Put the glitter down!"
I think she'd be smart and funny...but don't we all think that, about our children?
The sun will rise on October 30th, and it will set. Millions of children will be thinking about Halloween costumes and candy...but I will be thinking about my princess.
Morning and evening will pass. The world will most likely not end, and I will get up on Thursday, October 31st, and I will have not just survived; I will have lived through another birthday and another year, of not having her with me...I will be one more birthday closer to seeing her again.
It's been 6 years and 322 days (as of today, 10/16) since I last held my baby girl's hand, and kissed her goodbye. That's 2,512 days.
I am 2,512 days closer to seeing her again.
October 30th is Hannah Elizabeth Gayle Cooley's 7th birthday, and as a mother who has lost a child, I grieve; as a woman who is also a child of God, I have hope.

I reference this book every year around this time, and if you've read my blog, you probably know that. It really does explain this month better than anything I know. You consciously/subconsciously dread the date, it comes, you survive, and it's okay (it's not okay). It builds up as much as you let it; you break through it as much as you let yourself break through it. You can see the tsunami coming, turn your back, and let it hit you full force. It will drag you down into the bottom, and break you, and drown you in the process...or you can cling to Christ as an anchor, and turn and face the wave, knowing that it's going to hit you, but knowing that you're hanging on to something/Someone Who will protect you...He will keep you grounded, but He won't keep you in denial. You will have to face it.
But you will stand, with His help, after it passes.
Jesus helps you face the Monster At the End of This Book: Yourself. 
This time of year in particular, I am My Own Worst Enemy. I'm Grover--I'm The Monster. 
When I pull back the layers...when I embrace Him instead of my own grief...when I confront the truth of the loss, my own lack of understanding (does ANYONE ever understand why their child died?), and when I trust Him implicitly, the Monster is revealed for who he truly is: I am a broken woman, with scars and missing pieces that only He can heal, and He can only heal them when I let Him. 
He is my Anchor; He is my Healer.
He is the One Who calms the storm of grief, Who soothes the panic attacks and the questions that for now, don't have answers.
He is the One I trust.
And He makes ALL things new. 


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