Showing posts with label adulting. Show all posts
Showing posts with label adulting. Show all posts

Tuesday, October 27, 2015

The Perceived Suckiness of the Plans of God and Silencing the What-Ifs...



For years, October 30th glared at me from the calendar.  Every day that approached was like another page turning in “The Monster at the End of This Book” (see THIS for more details—with pictures!).
This year, I’m not sure what’s different…Is it the pace of life? Is it the fact that physically, this year has left me feeling pretty spent (and marginally emotionally uninvested)? Is it the fact that I am finally, truly at peace with a clearer understanding that my daughter—who would be turning 9 this year—is, beyond the shadow of a doubt, with my Savior? 

I generally have my prayer time on my commute to work. I feel like I can have an unadulterated, uncensored, frighteningly-but-beautifully frank conversation with the Lord, free from pretense or interruption (with the glaring exception of the occasional eruption of road rage). This morning, we talked about Hannah…about the fact that my concrete beliefs that there is a Heaven, that Jesus is there, and that my daughter is with Him, are probably the only reason I have survived the loss of my firstborn. Without that knowledge, without knowing Him (in as broken of a way as I do), I would be lost. Even with that, there were days the despair was so heavy that I wanted to end it all. I will never, ever forget those days of darkness…there really is nothing like it. It’s like living in a state of suffocation…but not quite enough that you get the bliss of unconsciousness. It’s scary, because all you want is to be extinguished; however, your own faith keeps you from pulling the trigger yourself. You just pray that something else kills you (I can’t tell you how many times I prayed my heart would just explode). It’s the hardest thing a soul can go through…And we survived.

We made it (oh, the fear that goes into making that actual statement…there is no pride there, trust me. There is simply the acknowledgement and gratitude of the Spirit of God that kept us from self-destructing). I’m not sure how I didn’t off myself, or how David didn’t lock me up (or why he hasn’t as of today…I’m not ruling it out as a possibility at some point in my life, LOL), other than by the grace of God.  And how thankful am I, for that grace? If not for the grace of God…I wouldn’t be here. Jericho wouldn’t be here.

When I think of all of the joy that would be missing from the world, without that little boy…
God is good, y’all. He sustains us, even at our weakest, our most unlovable, our most vulnerable. He doesn’t walk away, even when we yell at Him in our anger. He doesn’t give up, even when we don’t want to breathe. He stays, even when we are unfaithful.
His ways are not our ways. His plans don’t make a lot of sense to us…and who are we, to think that they have to? I had a friend who recently said, “I’m sick of being told that God has a plan for all of this. If this is His plan, His plan SUCKS.”

After I took a few steps to the side, so as to avoid the proverbial lightning strike (God doesn’t really do that…I hope), I didn’t really say anything back to her. I just told her that I understood. It’s true…to us. Sometimes His plans just suck. Going into heart failure sucked.  It sucked, to lose my daughter. It sucked, when my husband lost his job. Those years of unemployment/underemployment? THEY SUCKED. Finding out I had cancer this summer? IT SUCKS. Do I think that God sits in Heaven, intentionally inflicting pain on His constituents? No…but I certainly think He uses it to draw us into Him. He takes these things…these results of living in a fallen world that hates His children…and He recognizes that they hurt. Jesus wept when His friend Lazarus died. He wept, even when He knew what was to come. He cried because it sucks when your friends die…even when You’re the Son of God. Jesus cried in the Garden of Gethsemane. Why? Because He knew what was to come…He knew it would hurt…He knew it would separate Him from His Father…and He knew it was gonna suck, BIG TIME. Sometimes, God’s plans just suck.

(It’s at this point that I recall how many times I got into trouble for saying something/someone totally sucked, in elementary-junior high-high school. Never really broke that habit.)

Even though things are arduous (fancy-talk for “sucky”), it’s only for a little while in the grand scheme of things. There is always, always, ALWAYS another side to the battle. There’s a break in the storm; even hurricanes eventually come to an end, although they seem insurmountable in the process. 
It WILL get better, because He is. HE IS.

We have that truth—the truth of The Great I Am. Sometimes, those two little words are all we can wrap ourselves around in the middle of the chaos…

I spent about an hour on the phone with my Mama the other day. She’s taught me a lot, and I feel like she’s lived a lot of life in a few years. I’m sure I’ve aged her a few decades on my own, although you’d never know it to look at her—she’s super snazzy!!!! I’d like to be more like her, when I grow up. We discussed the fact that this summer was pretty much a great big pile of poo. Seriously—getting cancer (albeit, “the good kind”) really trashed most of my plans. It took up all of my vacation time, rendered me unable to tend to my garden (big waste of $$), made me unable to really have too much fun (minus my concerts—those were a blast), and I am STILL dealing with trying to get my meds regulated. She took quite a bit of care of me and JD during that time; the emotional toll of being told mid-surgery that your child (even a grown-up child) has cancer is pretty great….even when it’s “the good kind” (that phrase!). If not for the ever-changing antics of JD (and my concerts), I’d like to forget most of this summer. So would my mother. She really took my diagnosis hard, and I think she still struggles with the aftermath. Every 6 months for the next 2 years, I will have tests; because of the high reoccurrence of this kind of cancer, I’ll probably have labs to monitor my thyroid levels for the rest of my life (also, to maintain the dosage of replacement medication that I have to take).  That’s a lot to ask of a person as a patient; I think it’s more to ask of that patient’s mother. My mom has held my hand through 10 of my 11 surgeries; it’s safe to say that this one was the hardest on her.  Cancer is a kind of chaos that requires clinging to “I Am.” Even the “good kind” of cancer wreaks havoc on a mother, when it’s her child. My mom really hit her knees through this process, and I know her prayers have been heard.

Mom and I talked about my fears and frustrations in our phone call. The change of seasons…grayer days…gloomy weather…the ever-approaching end of the month…It all affects me, emotionally and spiritually. I look for ways to escape; I find myself dealing with irrational fears. I don’t want to go anywhere; I just want my blanket and a fireplace screensaver on Netflix. I eat more, and I make bad choices. I’m more introspective and less social; I bake more, and channel my lack of adventure into a recipe book. The irrational fears are a problem. The “what ifs” go from a murmur in the back of my brain to a screaming chorus in my head that makes me paranoid about everything, and there is a daily battle to keep it in check. You could say that my natural crazy gets “turnt up,” and it’s a problem. Mom talked to me about prayer, and I said that I wondered if it’s the natural fear associated with Halloween that I’m subconsciously picking up on? She said it’s not…it’s this time of the year. She’s right.

Not having a birthday party to celebrate is a nagging constant in my brain and in my heart…I’d be lying if I didn’t admit that it hurts. This time of the year makes me more emotionally sensitive. I HAVE to disassociate; I have to unplug. I have to make myself stay off of Facebook for a few days; I have to stop reading the news (I think I need to do that, regardless of the time of the year). There are 29 days each fall where the clock is pounding in my head…where was I, what was I doing, what was Hannah doing? Only in the past 3 years has that improved, and that is honestly because having a toddler means that I don’t have time to climb down that rabbit hole. It’s an unfair pressure to say this about my son, but he has, in so many ways, pushed me to a different place of healing where Hannah is concerned. You simply, physically, cannot focus on the sadness and on what you missed, when there is a child that takes up most of your attention. Days become markers on the calendar, rather than the overwhelming emotional valleys. Life forces you to move through and walk forward, rather than stopping (notice I didn’t say “move on.” That’s another discussion).
That’s not to say there aren’t pauses, and that there aren’t moments where it hits…that there aren’t moments like this morning, where I wonder what would have been? What would she be like? I have no idea…
But I know what her brother is like.

And I suspect that had she made it…had she survived…he wouldn’t be here (we wouldn’t have tried again, because of the damage I sustained to my heart. I really don’t think David would have wanted to risk another pregnancy, and I think I would have been reluctant to, as well). God has a plan for that little boy that we have yet to have a clue toward…

I think the greatest way to celebrate Hannah’s birthday is to thank her…Having her, knowing what motherhood felt like, loving someone so strongly and having that blessing to hold in my arms, was the greatest gift I’ve ever been given outside of my salvation. She has an eternal impact on my life and on my soul, and I am grateful for the chance I had to hold her. My son is in no way, shape, or form, a replacement for her…but he IS a response to her. I knew that I knew that I KNEW that we were meant to be parents after Hannah died, and we pursued that dream until it became a reality…The reality known as Jericho.

What we have does not replace what was lost…and focusing on our present is the best way to honor the past.

So, on October 30th, I’d like to say that the day will go on as mostly “normal:” David and I will both go to work; JD will go to daycare. We have a meeting scheduled that afternoon, and I may convince David to go out to dinner; otherwise, we will treat the day as any other. At the end of the day, though, I will get a candle out of our coat closet. It’s a Birthday Cake candle, made by a mother in Kentucky who lost her son. I light it one day a year, on Hannah’s birthday.  I will light that candle, and we will pause…we will hold our son a little tighter, and maybe keep the bedtime ritual a little more relaxed…We will kiss our boy, and we will be thankful for the love we have, for the grace of God, and for the beauty of knowing the peace of the Great I Am…We will marvel at the good, the bad, the sometimes-perceived “suckiness”, and the overall, misunderstood awesomeness of the plans of God….And we will cling to the verse that David chose as our wedding verse, because every year, it just becomes more and more clear that only He fully knows what He is doing; all we know is that we can rest in His plans because above all, He is a good God:
9. However, as it is written: “What no eye has seen, what no ear has heard, and what no human mind has conceived” the things God has prepared for those who love Him—I Cor. 2:9 (NIV)

Monday, July 20, 2015

Radioactive Fall Out...


I think I’m just going to turn all of my blog titles into Fall Out Boy and Panic! At the Disco references, LOL.

Since my last blog post (6/2015), I’ve had my radiation treatment (AKA, “ablation”) and have started my thyroid replacement medication (TRT). I’ve also gone to my first secular concerts (I’m not counting Transiberian Orchestra and Pentatonix), messed up my meds and gone off the deep end, and kind of gotten back into a routine. It’s been an eventful 30 days.

On 6/4/15, the surgeon went in and removed my thyroid, and a lymph node. Sure, having your thyroid removed has some major consequences, but you still have some thyroid cells left in your system. Radiation annihilates whatever thyroid cells you have left, leaving you feeling like your arms and legs are made of lead. The radiation treatment is relatively simple—you take a pill. That’s it. You spend 3 days in total isolation, 7-10 days away from your child, and about 7 days sleeping separately from your spouse…5 days after you take the radioactive pill, you get to start your TRT. By day 4, I could barely walk to my car. I was working 4-hour days, and all-but-crawling to my car. The day before I started the TRT, I sat in my car and bawled like a baby in the parking lot of my job. I was pretty much at the end of my rope, crying out to God, and knowing I could not cope with being awake for the drive home. My little sister had a few days where she’d answer the phone, and talk to me about anything-and-everything to make sure I stayed awake for my 45-minute commute. She was a Godsend!

On my 5th day, I took the little miracle pill known as TRT. By the next day, I was back to an 8-hour work day…but by Thursday, everything went downhill. Thursday, Friday, and Saturday were increasingly awful; by Saturday, instead of being happy to see my son after 10 days, I was annoyed by him; I told my mom I was “in Hell,” and I was devastated that the “little miracle pill” wasn’t going to work for me. I didn’t know what to do, and I was so angry. David caught the worst of it; I still can’t yell, so I whisper-screamed terrible things at him…He didn’t know what to do with me, either, and we were a mess….

But then Sunday came, with a frightening realization: My medications were messed up. Instead of taking my usual ½ Wellbutrin (anxiety med) and 1 Coreg (heart med), I was taking 1 ½ Wellbutrin, and no Coreg. THREE TIMES my normal dose of Wellbutrin? Small wonder that I lost my mind. When I corrected the dosages, things began to get better. Within 24 hours, the thyroid meds and my regular meds were working together, and things seemed much better (and continue to be so).

I’ve had my first body scan since my radioactive treatment; the results were not anything unexpected, and sound a little scarier than they are. Basically, the scan looks for all of the thyroid cancer cells that take in the radiation.  That determines how far the cancer has spread, and lets them know if they’re getting it all. My scan showed that the cancer has spread into more lymph nodes than they thought, but since the cells are taking in the radioactive isotopes, then they’re being treated, slowly-but surely. They will monitor my thyroglobulin and TST; as long as the thyroglobulin starts to go down, I’m in good shape. If it doesn’t go down, or if it starts to go up, then I’m looking at more radiation/surgery. I’m hoping to avoid both. I won’t have another scan until next year, and will have regular labs over the course of the next 2 years. Unfortunately, that means the “C” word is now a part of my vernacular. Frankly, I’d like to ditch it.

Other happenings since my last post: Our roof has a hole in it. There’s a tarp between us and total destruction. This freaks me out, and pesters me in the back of my brain like Chinese water torture (guess that’s not very PC). My husband’s car broke down, but it got fixed, so that’s good….and mice decided to invade our house, so I fought back with an electromagnetic ultrasound-thingy that seems to be working. All of that happened the week I had to do the radiation, so that was a BAD week in our house. :) We’ve only JUST had someone out to put a bid on the repairs, so I’m really, REALLY ready to have the stuff fixed. Ugh—being an adult/homeowner is hard, LOL. I’m all for selling the house and just renting. I’m over this grown-up-property-owner crap.

The biggest issues I’ve struggled with through this whole cancer-thing is anger—I think I’ve said that before. I’ve just been angry at the whole process…at having a bar-coded card I have to present at the doctor’s office, at the inconvenience of losing all of my vacation/sick leave to something so “unfun,;” at spending yet another summer dealing with doctors and surgeries, instead of getting to do what I WANT to do (the beach!!!!  I just want to go to the beach!!!!!!—stomps foot—BEACH!!!!), and it’s been hard to let that go. My friends are going to Vegas, and the Mediterranean, and England…RAWR. Yes, there are people that have it FAR worse (my own stepbrother had a terrible motorcycle accident—he’s in much worse shape right now), and I got “the best” cancer you can get. I am fully aware that I am a giant, monster-baby-big-fat-whine-bag, and I’m being a bit of a punk about it all, truly. I just wanted to take a frickin’ vacation, already, is that okay?!?!? Sheesh.

Anyways, all of my douchery aside, I am thankful. Dealing with no thyroid is NO JOKE, and the more I read, the more I realize that my thyroid probably crapped out a long time ago. Getting it out, and getting the right medication, is probably a blessing in disguise in some way (that I will figure out after I finally get to a beach somewhere). I’m grateful that my husband hasn’t flat-out bent me over his knee and busted my rear for being a brat. I’m grateful my parents were able to take care of my son for 7 straight days, and care for me 3 solid days. I’m grateful that I opted for insurance through my husband’s employer this year, because my employer’s benefits would not have made this process very cost-effective.

Thanks to my friend Hannah, who made me a wonderful balm, my incision is healing nicely. Do me a favor, though—don’t make comments about it the first thing you say when you see me. Truthfully, I’m pretty self-conscious about it. You’d understand if your throat got slashed.  I’m grateful for my friend Amy, who has made me get out and try new things; she took me to see Fall Out Boy and Panic! At the Disco at Riverport (Hollywood Casino Amphitheater) last week, and although I’m tired, it was so much fun. I feel like I knocked a few things off of my bucket list (that’s not a cancer reference; I firmly believe everyone should have a bucket list, and I need to make mine. And yes, THE BEACH is on it.).

So, there’s the update. Oh—everything tastes like burnt metal. That’s no fun. You think I’d just stop eating, and be skinny, right? Of course not, LOL. Someone gave me the tip to rinse with Orajel and water, which I have to try. Water, which I know I need the most, tastes THE WORST, so I’m thinking of developing a lemonade habit. That still tastes okay.   I finally drug my butt back into church yesterday, for a very self-conscious but pleasant visit. It was nice to be back, and nice to be in that environment again.  JD is potty-training like a rock star, and I’m hoping we’re done with it by the end of the summer, in spite of the hectic disruption of our summer-with-no-vacation (I just can’t get past it. BEACHBEACHBEACHOCEANBEACH!!!!!!!!!)  And there you have it. Every day seems a little more “normal,” and I’m excited by being able to make it through the grocery store without falling over. I feel like this has been more of a hill than a mountain, in the grand scheme of things, and my hope is that we don’t have to go through this again. Time will tell. Until then, and even then, it’s all in God’s hands. Good thing, because I have no idea what the heck I’m doing.

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